“I didn’t have expectations for this,” she said this morning as we awoke to a world with no electricity.  She’s eight and a planner and a world with sudden change sometimes leaves her feeling powerless...   “It’s good practice for life,” I told her.   “Good practice for when life hands you circumstance’s you simply cannot change.”  … Continue reading A Powerless State…Literally and Figuratively

“It’s hard to believe it’s all real”, she said as we finished reading the nativity story yesterday morning.   I don’t know about you, but I think it’s easy to understand why someone would have trouble believing the Messiah would come in the form of a baby, born in the filth and stench of a stable.   … Continue reading Manger Change

It was sign 9" x 6" sign gifted to me on what would have been his 45th birthday.  A sign stuck in the corner of a flower shop, waiting patiently to be purchased and laid in my hands. A sign purchased by someone who has helped me walk many a mile when I didn't want … Continue reading We’re All Just Walking Each Other Home

  ­­­­­­­­­­­­­­­­­­­­­­­­­­­Late winter. It can be my most difficult time. Before the new greens of spring and first blooms are born, comes the barren pallet of winter —a season desolate, dreary and dark. Because dark always comes before light.   It was late winter when we found out her daddy had ALS. Amyotrophic Lateral Sclerosis. Otherwise … Continue reading Dear World: What Wombs, Blooms and Tombs All Have in Common…

One month ago today, I awoke from a solid, uninterrupted, six hours of straight-through sleep-which almost NEVER happened. One month ago today, I awoke to the quiet hum of a non-invasive ventilator and no other sound was heard. No moans. No groans. No indication of discomfort in any way. This was not the norm. One month ago today, … Continue reading Dear World: What happened one month ago today…

Two trips to our favorite spot in less than a month. Both gifts. Both unforgettable. Both tears and tide drenching our shirt-tales the entire time. I sit solo on a deserted beach that day, watching as Hurricane Hermine tries to give us all a run for our money. Sitting awe-struck with eyes glued to sea, the roar … Continue reading Tears and Tide

So the trouble with living is that sometimes you actually have to...well...live! You see, this season is absolutely, indescribably, BEAUTIFUL in so many ways. But friends...lean in close...SHHHH...here comes the secret. This season has also been absolutely, indescribably, MESSY, painful, lonely and completely slaying on ALL levels. The days AND nights are often too long AND too … Continue reading Dear World: Intermission over…

"This is ALS,"... These were NOT the words we ever expected to hear. "This is ALS," was the LAST thing in the world we would have picked had the choice been ours to make. What do you do when someone standing in a white coat tells you the highly anticipated end to your journey is … Continue reading Dear World: Why we know this pain will not be wasted…