So the trouble with living is that sometimes you actually have to...well...live! You see, this season is absolutely, indescribably, BEAUTIFUL in so many ways. But friends...lean in close...SHHHH...here comes the secret. This season has also been absolutely, indescribably, MESSY, painful, lonely and completely slaying on ALL levels. The days AND nights are often too long AND too … Continue reading Dear World: Intermission over…

"This is ALS,"... These were NOT the words we ever expected to hear. "This is ALS," was the LAST thing in the world we would have picked had the choice been ours to make. What do you do when someone standing in a white coat tells you the highly anticipated end to your journey is … Continue reading Dear World: Why we know this pain will not be wasted…